Unimaginable

Each year as October rolls around I can feel the grief settling in. Not that it isn’t always present but it becomes extremely heavy. My mind becomes foggy. Fatigue sets in. 

I have learned over the last twelve years to embrace this time. To lean in to my grief season. I take off work the entire week of A’s birthday. To tap into the grief, I go through his photo album, re-read sympathy cards from 2011, watch movies about death and dying, read books about babyloss and grief. I want to get those big, stormy emotions flowing. I’m going to be lethargic and emotionally fragile this time of year no matter what (it’s like my psyche remembers even if I try to distract myself) so I might as well make it therapeutic. 

This year, with a two-year-old at home, I have packed up my grief kit and left the house. I cannot fall apart when my toddler is nearby constantly needing me and my maternal spidey sense is on alert. So I’m here at the public library, stifling my crying while I sit in a corner with soft instrumental music coming through my headphones and reading Brooke D. Taylor’s memoir, “Unimaginable.” 

Maybe you know Brooke and her story from her blog - by the brooke. Either way, it seems like every other page she hits me right in the heart. Her ability to verbalize the experience of stillbirth and the aftermath is such a gift for me. It affirms what I’ve been through, how I have felt (and still feel). It crystalizes my own experience in ways that deepen my comprehension of it.

I haven’t even finished the book yet (I likely will before grief week is over) but I absolutely recommend it. Thank you Brooke for being brave enough to publish your most vulnerable times and feelings.

Grief Doula

Doulas offer support services during labor and delivery and also postpartum when parents are physically and emotionally spent. As I lay in bed reading Dear Cheyenne and connecting with my own grief eight years out, I thought how nice it would be to have a grief doula. The doula would cook soul soothing food (for me, rich soups, pork in any variation and plenty of sweets), make tea/coffee, cover me with a heavy blanket when I sat down to read and journal. The doula would also be unfazed by the intense emotions pouring forth from across the spectrum; quietly moving breakable things out of the way when rage sets in and I physically lash out. Sitting with me while I howl in anguish and choke on my tears. Tucking me in for a nap after all the exhausting grief work.

I think this fantasy stems in part from the solitude of grief; how alone I sometimes feel with all the thoughts and feelings; with the weight of grief. Part of it, obviously, is inspired by how vulnerable I feel when I surrender to my grief. The idea of having someone take care of me when I’m feeling shattered instead of the status quo - me taking care of everyone else in my household.

Maybe there’s a business venture here…

Grief Quotes #8

"In a sense, the process of mourning is an outward expression of that love that now has no physical or interpersonal place to be enacted."

- Dr. Joanne Cacciatore

From Bearing the Unbearable

Grief Quotes #7

"Grief can be terrifying.

And why would we not be afraid? Deep in grief, we look up and see the reflection in our mirror is not our own, not us as we have previously known ourselves. We are changed, and we do not recognize the stranger we have become. We long for our old lives, our old selves; we crave meaning and belonging - we ache for them.

The yearning is unquenchable.

And that sense of emptiness propels us toward unsuccessful attempt to fill that person-shaped hole. The distractions we use to take us from our feelings are one way we try to state that emptiness.

The only alternative to distraction is being with grief - one painful, terrifying moment at a time."

- Dr. Joanne Cacciatore

From Bearing the Unbearable

This passage resonates with me. Because A was our first child, I had the luxury of throwing myself into my grief. I didn't have living children who needed me to be functional. E stayed home with me for the first two weeks. After that, I had another 4 weeks of maternity leave to hole up and relinquish myself to the waves of emotions. It was exhausting; it was ugly and most of the time I wondered if any of the grief work was having an effect.

In retrospect, I do believe that those early weeks and months of devoting myself to processing A's death and being with the grief put me in a better place when Dragon came along. Once we had a living baby, there was hardly a spare minute to cry and breakdown. If I hadn't faced my grief head-on in those early months, I wouldn't be the functional person I am today.

Not that there isn't a place for distraction in traumatic grief. E and I binge watched every season of The Big Bang Theory (online shows meant no chance of diaper commercials triggering a meltdown). I guess, like most of life, it's about balance. Balancing distraction and "being with grief." And, like most of life, it's easier said than done.

Grief Quotes #6

"There is, I am convinced, no picture that conveys in all its dreadfulness, a vision of sorrow, despairing, remediless, supreme. If I could paint such a picture, the canvas would show only a woman looking down at her empty arms."

- Charlotte Bronte

Grief Quotes #5

"The thing about grief is that there isn't a place or time at which we arrive once-and-for-all at peace, or healing, or completion."

- Dr. Joanne Cacciatore

From Bearing the Unbearable

Grief Quotes #1

During my grief season this year, and especially over the course of A's days, I read and re-read some of my favorite grief books. Even though I've read them before and even though I'm seven years out, some passages and quotes struck me right through. They are concise, poignant observations or a feeling I carry that someone finally articulated perfectly. I thought I'd share them. This is the first of the series. Maybe one or two with resonate with you too.

This first one is a favorite of mine. It speaks to mustering the courage to face and embrace grief.


"We do not experience grief without love, and we cannot experience the love without feeling grief. When we open our hearts to grief, over time, the delineation between the two states deliquesces. Our hearts open because grief, like love, is a matter of the heart."

- Dr. Joanne Cacciatore

From Bearing the Unbearable

Research Opportunity

Ever since A died seven years ago, I've sought ways to create a positive impact from his short life. We do random acts of kindness in his name. I donate books and funds to loss and bereavement groups. And, on a more personal level, I think of myself as a sort of grief ambassador. Whenever anyone in my life - co-worker, close friend, relative - suffers a loss, I don't hesitate to step forward. I'm not bashful about sending food or about asking how they're doing and offering to sit in the grief with them. I like to think that my willingness to speak of grief, in all its facets, is in some small way working to de-stigmatize death and grief in American society. I also feel like it's a compassionate way to honor A's legacy. With this in mind, it's no surprise that I immediately jumped at an opportunity to participate in a research study about grief.

Fellow bereaved mom and blogger, Jen, is a professor and is conducting research about grief and how the bereaved maintain records and items that connect them to their lost loved ones. You can read more about it on her blog here. It is not exclusive to baby loss and your records needn't be paper documents. If you would like to participate, I assure that Jen will be kind and understanding. Please consider it.

Seven

My boy would be seven. S-e-v-e-n. A lanky, second-grader comfortable after two years at elementary school and able to provide support to his little sister just venturing into kindergarten.

Like all of these birthdays, seven seems to hold its own significance. Maybe not in the most direct of ways, like the firstbirthday or even the fifth birthday. But it's made me think about an event I attended at a local Native American community center many years ago (well before I ever had kids which feels like an eternity ago). The speaker presented on the significance of the number seven.

She explained that human embryos begin to develop genitalia at 7 weeks gestation. This is the first outward evidence of gender; differentiation and a step in identity.

At age 7 years, most children are shedding their baby teeth and assuming their adult teeth; another major transformation.

Seven years after that, at 14, another major life milestone - puberty. When adolescents' bodies mature and are now capable of reproduction.

Unfortunately, I cannot recall what she said about age 21, the last in her series of 7-year divisions. But I think it was something along the lines of becoming a full-fledged adult who contributes to the community.

Seven years, is also the state-mandated medical record retention policy in our state. When A died, we took advantage of all available opportunities to try and determine why our healthy full-term baby died suddenly. We signed off on lab tests and agreed to an autopsy and genetic testing. After we had all of those reports in hand, we visited two different perinatal specialists in our area to see if they could glean a cause of death. They each came to different hypotheses; one said it may have been some sort of pressure on the cord. The other said, it could have been an infection. We will never know for sure. One of them did note, that A’s heart was enlarged (per the autopsy report it weighed 17.3 grams, well above the high end of average at 14 grams)

In the months after A was born, I requested my prenatal and labor and delivery records along with all of his hospital records. Fresh in mourning and with an aching heart, I read through the autopsy report. It ripped me apart to read how much each of his organs weighed, trying to avoid thinking about some stranger in a lab coat dissecting my boy, cutting open his body and snipping loose each organ. But we wanted answers, for our sake, for A’s sake and for the prospect of future children.

My recollection was that while reading through the autopsy report, there was a single instance where his heart was reported to have been of normal size. That there was one digit off, a typo. This morning, I scoured the house looking for A’s medical records. I needed to find that autopsy report and call the hospital to have it corrected. This week is seven years since treatment, which means they’ll destroy his medical records this week. I need the record to be accurate.

The records weren’t in his box – the one with all his memorabilia. They weren’t in my filing box. They weren’t in his binder that holds his photos. WHERE ARE THEY?! I began sobbing, hyperventilating, spinning into a panic. I had to find them. The hospital will destroy them any day now. This is my last chance to set the record straight.

Finally, in the farthest corner, in a bin I didn’t even remember we had, I found the records. I sat down and went through them again, agonizing over words like “the usual Y shaped incision was made.” I read through the entire autopsy report and didn’t find the discrepant heart size. I re-read the autopsy report. I again, only found the 17.3 gram reference. I picked up the thicker stack of records; my medical records and went through them page-by-page. No discrepancy. Had I misread it all those years ago? Am I misremembering now?

I went through A’s and my records several more times searching for a different measurement of his heart. Nothing.

I have resigned myself that I will not be reaching out to the hospital to right an incorrect report. But I don’t know if I’ll ever shake this nagging feeling that it was an error.

And what does it matter? So what if his heart was enlarged? His brain was also much above the high end of average weight. (Oh the thought of his skull being opened and someone removing his brain with two hands and placing it on a scale!!!!). It may not be an important clue in this medical mystery of why he died. Maybe more than anything, it’s just a manifestation of my need to parent my dead child and there being so few opportunities to do so.  

Grief Week

With seven years of grieving experience, I have come to know what to expect during my grief season and what I need. This week is A’s seventh birthday. I planned ahead by taking the entire week off of work so that I can fall apart and get in touch with all of the emotions I so often quell throughout the year. I also stocked my freezer with ice cream and my pantry with Oreos*.

This morning, E and I drop the girls off at their schools and he continued on to work. I returned home and set up (grief) shop. A thick blanket on the recliner, water bottle and coffee within arm’s reach, a box of tissues, A’s tiny urn. I settle in and delve into books that get me in touch with my grief and that validate my feelings and my experiences (like They Were Still Born and Bearing the Unbearable and Love You Forever – all of which were written by bereaved parents).

This week, for me, is an opportunity to inhabit my grief. I wade into the thick stew of emotions and, without judgment, embrace whicheverfeelings come. I give myself permission this week to fall apart; to abandon my usual responsibilities (ie regular showering, laundry and making meals for my family – we’ll subsist this week on pizza, frozen chicken tenders and mac-n-cheese) and to do whatever feels right in the moment. Could be sleeping. Could be exercising. Could be gardening. Could be journaling.

I will go through A’s pictures; all of the ultrasounds and also the photos of our one day together. I will watch the short video my husband took, unbeknownst to me at the time, while I cradled that long, limp boy and delicately caressed his perfect body while quietly uttering, “I don’t understand.” over and over again.

I will listen to songs that trigger tears. I will bawl, howl and sob. I will re-read the condolence cards we received seven autumns ago (only those with heartfelt, genuine notes). I will mound the used tissues up, wet with tears and snot, until they topple onto the floor.

I will honor my love for my boy by honoring my grief over his absence.

*I am in no way compensated for promoting Oreos. I doubt Oreos need any promotion.

Why he died?

Dragon, age 3 years 1 month, in her bed looking up at A's photo on the wall:


Dragon, "Where's A?"

Me, "He's right there, on the wall where he always is."

Dragon, brow furrows, pondering

Dragon, "He died?"

Me, "Yes, Love. He died."

Dragon, "He passed away?"

Me, "Yes, he passed away."

Dragon, "Why he died?"

Me, "We don't know. He was just a little baby when he died."

Four Year Ramblings

My sweet still baby would be fours year old. He’d be more than a month into pre-K by now and getting excited for his birthday and Halloween shortly after. I’d be bustling around to get all three kids ready for Halloween, decorate, stock up on candy and also plan my son’s fourth birthday party. I imagine he’d be more of a boy and not so much “toddler” anymore. I’d marvel at how fast the time goes and swoon over the memories of him as an infant. What was his first word? When did he take his first steps?

I do not feel like the mother of a four-year-old. And I certainly don’t feel like the mother of a boy. Our girls are not girly by any means, but they aren’t the energy balls so often prone to destruction that little boys tend to be.

E came home from the grocery store the night before A’s birthday with a pack of beer and two packages of Oreos. Let the emotional self-medicating commence. (I’m shoving fistfuls of Oreos in my mouth as I type this. It doesn’t make me feel any better but it’s kind of a distraction.)

I watch Dragon play with the four-year-old neighbor boy – born 5 months before A – and instantly my mind fantasizes about her interacting with her big brother. She watches the neighbor boy enthralled with his super squirt gun but she has learned not to grab or even ask for his things because he is not a good sharer. She waits until he drops the squirter to get another toy and then swoops in behind his back and starts fiddling with it. She’s trying to figure out how it works, but doesn’t want to ask because that would draw attention to the fact that she now possesses the coveted toy. She emulates whatever he does. You can see the adoration in her eyes as she watches the neighbor boy. On days when it’s just us at home, she’ll pick out a shirt to wear and tell me that the neighbor boy “likes this one.” Why is she seeking his approval? Must be that he’s older and she looks up to him. I can only imagine what kind of big brother A would be. I’d give anything to watch the three of our children play/argue/fight together like normal siblings.

 ________________________________________________________________________________

“What do you want to do for his birthday?” I ask E. He thinks briefly and says, “Something he’d want to do.” I suggest the zoo, museum, bounce house or indoor trampoline park. “All of them?” he responds. My brokenhearted husband, I know it hurts even when, most of the year, you don’t let on.

So this morning we set out to have a special day for Big Brother’s birthday, doing things he’d like to do as a four-year-old. We went to the trampoline place and then out to a restaurant for lunch. A nice elderly couple complimented us on how cute Sheep is at 3-months old and joked with E that two daughters is really like having three wives. No mention of our absent son.

I wish had more time to spend with my son and with my grief this fourth year, but a 2 ½ year-old and a 3-month-old don’t allow for much alone time. In fact, I’ve hardly cried so far this month. I think it’s mainly because if I have a moment of time to myself, I try to lay down (not a whole lot of sleeping going on. Eh hem, I’m looking at you Baby Sheep.). Finally in the shower this week I began sobbing. Now I just need like 15 more showers this weekend to get all the emotions out.

Four years old and I wonder who he’d be. Four years old and I miss him like crazy.

Group No More

E and I attended our first bereaved parents’ support group a couple weeks after A died. I would have gone sooner but that was the next scheduled group. Before I was discharged from the hospital I knew I wanted to try the local support groups. I was desperate to try anything – the books, the groups, the blogs – whatever stillbirth and babyloss information I could get.

For more than three years I have been attending babyloss support group. In the beginning, it couldn’t come soon enough. I wished that they were every single week. I craved the solidarity and the chance to talk about my son. As time wore on, the grief was less debilitating, less consuming on a daily basis and so I’d go to group as needed instead of every month. I could always count on that second Tuesday of the month if I was feeling especially sorrowful or when the holidays rolled around or whenever I needed a little extra support.

Recently, the facilitator who runs what was the most popular (by attendance) babyloss support group informed me that group was on a hiatus. Over the last year attendance at monthly support group had dropped significantly. Lately, there were only 2-3 people showing up, and sometimes, just one. The facilitator feels that that few of people doesn’t constitute a group because if someone did not want to talk, they would feel pressure to.

The facilitator has talked to other local support group leaders and even reached out to colleagues in other states; apparently this is a national issue one that isn’t restricted to babyloss support groups. The new trend, according to her, is digital support.

I have found tremendous support with the online babyloss community. I started this blog three months after A died and had been reading other blogs within a day of becoming a babyloss mother. The validation, camaraderie and support of all of you who read and write out here on the internet is invaluable. But it isn’t the same as face-to-face meetings. For me, there is value in both online support and in-person support group. That’s why I’ve regularly utilized both for the last 3+ years.

One of the benefits of support group is that I get to tell A’s story every time I go. And, to this day, I still breakdown while recounting the short life of our firstborn. By now, I am considered a “veteran” at group. Most of the other parents who are there are much earlier in their grief journey. I respect this important role as a “grief elder.” These parents are so freshly shattered and I can immediately go back to the place myself. I can empathize with the emotions, the challenges, the shock. When I walk out of group now, I don’t feel the relief that I once felt, but it is rewarding. I belong to the local bereaved community and also to the online community. And just like the women who have come before me, those I’ve met in person and those who I communicate with online, I want to be here for the unfortunate families who come after me.

So I am disappointed and disheartened that our local group is no more. I feel it is a disservice to the community. The facilitator is considering starting a few different Facebook groups (early loss, later loss/stillbirth, subsequent pregnancy, etc.) but it won’t be the same. I respect that not every person gets something out of support group. But I know I do. I wish there was more I could do to rally these broken parents and encourage them to drag themselves out of their isolation and to group. Truth is, so does the facilitator and she gets paid to do that, yet the numbers still dwindled and now the future of face-to-face support group is up in the air.

A’s 3rd Birthday

I wrote this to A on his birthday last month. I am finally getting around to posting it here.

My Darling Son,

We are having exceptionally warm weather. That last time we had such unseasonably mild October weather was in 2011 as we were counting down the days to your arrival.  I remember wearing sandals up to the week before you were born - convenient because my swollen feet didn’t fit into my shoes. I remember walking over to the hospital in a light t-shirt and rain jacket. I remember feeling the wetness of Daddy’s raincoat when he collapsed on my chest sobbing during that final, conclusive ultrasound.

Each beautiful sunny, autumn day makes me ache for you. As your third birthday approaches I wonder what theme you’d have chosen for your party this year? Pirates? Dinosaurs? Outer space? And what about Halloween, my Love? What would you like to be this year? Whatever you choose, we’ll come up with a corresponding costume for your little sister; it’s probably the last year before she asserts her own opinion.

I often wonder what the sibling dynamic would be between you two. I wish that I could be witness to that evolving relationship. Daddy and I have decided to have another baby. If we are fortunate enough to bring a new baby home I know it will break my heart all over again watching your sister dote on that baby. I fantasize about a 15-month-old you meeting Dragon at the hospital for the first time, kissing her face sweetly, insisting on holding her by yourself!

It is undeniable that you, dear boy, have made me a better mother than I would have been. I have shed my pride. Inhibition, embarrassment and judgment do not influence my parenting as they once did. I have clear priorities that spending time together, with Dragon and with family, are far more important than any chore or job or mess. I am liberated from concern about what others think or feel about me or my choices. Now I can do what is best for us without hesitation. Just one of your many gifts.

I love you with all my being.

Love,

Mama

Familiar Territory

A’s birthday is nearly here. As in years past, I start to get weepy and emotional as soon as the weather changes and it begins to feel like fall. Then, October arrives and I withdraw into myself. 

Right now, things are very similar to the weeks right after A died. I am lethargic, unmotivated, grumpy and very fragile. I feel utterly drained. Today, I literally laid on the couch while Dragon brought toys and books over to me; climbing atop and over me. I just didn’t have the energy to play. Poor girl. What will she think of this annual unraveling?

We put her to bed and I crash onto the couch watching mindless television until we head to bed ourselves. (This was our tactic in the early weeks to distract our minds from the stinging reality.) But, as it always is, I cannot fall asleep. Instead, my brain plays flashbacks of A’s days over and over. I berate myself for not having kissed him more, for ever having laid him back in the isolette; why didn’t I hold him the entire fucking time?! 

I have learned from past years and so this year I took offof work the entire birthday week. I am incapacitated. I’m barely functioning and facing my son’s third birthday makes most other things completely insignificant. There is no way I’m able to focus on work. Plus, the breakdowns are coming more frequently. You know how it is, puttering along washing dishes or something and then you just can’t suppress it. The tears come, you collapse, body shuddering with sobs. Eventually, you pull yourself together, gather the pile of wet tissues and try to get on with the day.

Also as in the early days, I’m avoiding going out in public. It is so incredibly uncomfortable and downright frightening. It isn’t just that I’m extra fragile right now and could have a meltdown at any moment. But it is more clear this time of year that I do not belong; that I am very broken. I do not know how to navigate social situations anymore and attempting to do so is very taxing to my already low energy stores. If it weren’t for Dragon, I’d stay in the house the entire week. Well, there is an exception. This year I planned ahead and scheduled some self-care by way of a massage. Though it gave me anxiety to go out in public and put my vulnerable self up on the table, it was totally worth it. Like all the chocolate I’ve been eating, it didn’t relieve my pain and sorrow, but I did feel more grounded afterward and definitely more relaxed.

New this year was the stay-super-busy-so-you-don’t-have-time-to-think strategy. It started subconsciously but I quickly realized what was going on. I packed my days full of chores, projects and the like. Much more so than the usual crazy multitasking that goes on around here. At the end of a ridiculously busy (and productive) day, I was beat and fell into bed only to get on the hamster wheel again in the morning. If there wasn’t any down time then my mind couldn’t register the anguish within, couldn’t notice that it was nearly October, couldn’t redirect my attention to the heartwrenching reality that we live in. This technique, of course, is only effective temporarily because inevitably all of those things do creep in. And, as noted above, eventually the grief becomes crippling and despite those lingering to-do lists, I am, essentially, in a catatonic state.

E, per usual, has stepped up as I have fallen apart. He picks up the slack around the house and tends to Dragon. He is extra supportive and always asks what I need. I find that I avoid making eye contact with him; the second I do, I devolve into tears; because he is my rock, because he is hurting just as badly as I am, because we are in this together and it is so fucking intense.

In the coming days I am trying to set aside time to let the tears flow and the rage run. I will sit down and go through A’s album again and again. I will go through his box of stuff. I will read the sympathy cards I saved from three years ago. I will cradle, kiss and talk to his miniature urn. I will carefully remove his hair from the envelope that houses it and roll the downy softness between my fingers; sniffing it in hopes of catching a whiff of my baby boy, before meticulously putting it away. I will read his little sister the book, Someone Came Before You which chokes me up every time and we only read on special occasions and holidays. I will curl up on the ground and bawl and howl. I will write to A. I will do all of these things because this is how I know to grieve and although the day-to-day functioning is easier than it was three years ago, the pain, agony and longing are as intense as they ever were.

Two Years' Raw

A’s second birthday was last week. The pain and rage were as raw and intense as they were two years ago. The agony was so overwhelming that the thought of killing myself crossed my mind (as it did those wretched first weeks). Not as a serious plan, but because there is no other way to escape such oppressive anguish. Be assured I am not going to harm myself, I couldn’t cause E or Dragon any more heartache.

Last year, I sent out birth-announcement-style cards for his first birthday asking our family and friends to perform acts of kindness in his honor. That, coupled with it being his first birthday, elicited much response. This year I did not send anything nor planned a get together of any sorts. We received a handful of texts and calls plus a few cards in the mail. A mere fraction of last year’s showing. It was pitiful.

I have never felt so alone in my grief.

If A was alive to celebrate his second birthday I am certain he would have been inundated with cards, calls, messages and gifts. I know many of our loved ones were thinking of him on his birthday so why the silence?

With his birthday came a heavy depression. I am apathetic towards work and daily responsibilities. It is a chore to drag myself out of bed each morning, yet I toss and turn trying to fall asleep at night. I’m moody and short-tempered. I’m emotional and distracted. I am utterly overwhelmed by the life obligations facing me. I want to hide beneath the bed covers for days. How I wish the world would give me permission to grieve like two years ago; afford me another bereavement period. Weeks of moping around the house ignoring phone calls, bills and responsibilities. No reason to leave the safety of my home.

But life doesn’t stop. And neither does this adventurous 9½-month-old dragon who crawls, clambers, climbs and explores every waking second. So I must tend to my living child. I must fulfill my scheduled work hours. I must keep up the house and feed the family. Because of my depression and grief, I cannot engage in life. However, I cannot fully commit to grieving and depression either, which leaves me in an uncomfortable, unresolved purgatory state.

Resurfacing

Hello out there. I realize it has been some time since I last posted. There is a negative portrayal of dead baby mamas who cease blogging after their Rainbow is born. While I can see the appeal and distraction of a new live baby, it isn’t the whole story of what’s been going on in Griefland.

After baby Dragon’s unexpected and traumatic birth, we had the usual no-sleep, constant baby-tending couple months. She then settled herself into a nice predictable routine. And then, the wheels came off. She was fussy and needy. She wouldn’t nap unless someone was holding her. She was crying while nursing and bucking at the breast. Her nighttime sleep actually worsened. I was at my wit’s end trying to understand my child and what she needed because clearly I was not guessing correctly. Meanwhile I was back to work part-time.

Fast forward another 6-8 weeks and after the pediatrician erroneously diagnosed her bloody stools as an anal fissure the G.I. specialist suggested Dragon had an allergy to the dairy in my diet. Since I have been dairy free our daughter is a happier, easier baby. AND THEN she started waking up every 45-60 minutes at night, all night long. WTF kid?! I thought we just fixed your tummy troubles. I was no longer functional – not mentally, not emotionally, not even physically (I was bumping into things, stubbing my toes…).

I’ll save you the drama of sleep training but we are making progress and finally all of us are getting some sleep.  All of that to say, I’ve been absent because I’ve been struggling to meet the bare essentials. I haven’t had the time or brain power to blog. I hope I don’t come off as complaining, I adore my daughter and am thankful for every minute we have together; I just want to explain that these first 6-months have been far more challenging and exhausting than I ever could have imagined and only now am I starting to get back to “normal” - like brushing my teeth twice a day!

Sometimes I wonder if we were “chosen” to have such a high-needs baby. If she had been our first, we’d probably be quite resentful and completely out of patience. But having lost A, our gratefulness at having Dragon keeps the rest of it in balance.

Obviously, if all my time and energy has been devoted to caring for her, I haven’t had much time to spend with A. And the chronic sleep deprivation has eroded the walls that compartmentalize my grief so when I’m laying in bed or admiring my daughter, my eyes well up and I’m flooded with memories of my sweet missing son. I really need to set aside some time to sit and be with him, to be with all the emotions. I miss him.

Most of energy still goes to treading water but now, at least, my head is above the surface. Lately I am struggling to survive but it is a different kind of survival from the grief stricken days. 

Toddler Tantrum

“I don't know about anyone else, but a massive toddler tantrum before 6 a.m. is exactly how I like to start my morning!”

This is a FB status I read recently. What I immediately thought was, “Yes please. I’d start each and every day that way if I could.” But, as always, I don’t write anything. Truth is I was rarely on FB before A died and since his stillbirth have avoided it even more so for the obvious reasons. What makes this particular post sting even more is that this girl’s son, the toddler culprit, was born a couple weeks before A. They’d be the same exact age.

I know many babylost parents have expressed it more eloquently than I, but this is just another example of how losing A has affected my parenting. Not that I took things for granted before, but when Dragonette is extra fussy or won’t nap unless she’s held, I am far more patient than I would have been if she was my first child.

I am not a saint of a mother. There are times when I cannot deal with her and pass her off enthusiastically to Daddy or Grandma. On rough days I look forward to a break in caring for her. But this newfound patience is most certainly a gift from my son. He has taught me what is really important in life and to cherish each small moment.

So when she won’t go back to sleep after eating at 3 a.m., I begrudgingly, but not resentfully, get up to walk and jostle her for an hour.

Some more...

...random thoughts.

My sleep deprived brain, which is coursing with mommy hormones, is playing tricks on me. It's telling me to return to the hospital. That he is exactly where we left him. Down the hall to the corner room. Crack the door and peek in to see our precious son in the isolette right beside the window. We wanted him to experience the beautiful sunset that fateful birthday. 

Let's just go get him. He must be there, right where we left him.

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We are 5 weeks into breast feeding. My boobs leak, often. Most times it just happens naturally an hour or so before she's due to eat again. But they also leak when I think about my babies. I was laying in bed trying to fall asleep and all I could think about was sweet A. Sure enough the milk starting flowing. In a way this comforted me. My boobs, my body still recognize him as my child even if so many others no longer mention him.

Many family members and friends are lining up to meet Dragon. A few of them, for various reasons, have never seen A's photos. I want to make it a rule - If you haven't sat with us in the heartache of looking through his album, then you don't get to snuggle this warm, living bundle of adorable-ness. You cannot acknowledge half of my children. It's all or none.

And don't me started on our friends who never sent a text, card, email or called after A was stillborn. Never said a thing, even 7 months later when we got together or the first time since his birth.

But I don't make any such rules. And I don't cut said friends out of my life. I am trying to be forgiving. Trying.

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It is low tide. The waves gently carry my son further away from me. I stand on the shore his infant sister at my breast. Clutching her with one hand, my other arm reaches desperately for him. He floats calmly on the waves. I cannot reach him. I cannot put her down to dive in. I scream; call his name, implore him to come back. I crumble to the ground sobbing, knowing he is beyond my reach. I glance down at the baby on my chest and cry harder.

Why does it feel like one or the other?

Holiday Wishes & Terror

This post is negative, whiney and rather pessimistic. You may want to skip over this one.

The holiday greetings conundrum is an exaggerated version of the usual dead-baby-conversation icebreaker all babylost parents face. When a friend, neighbor or colleague asks how my holiday was I have a choice. I can throw out a customary answer, “Busy; you know how it goes.” Or I can answer honestly, “It’s really difficult. Our son would be at a very fun age this holiday season.” The former discredits my daily experience but allows the social interaction to occur and end without the opposite party feeling uncomfortable. The latter often leaves the other person’s brow furrowed with disconcertment. Usually the other person says something they believe to be sympathetic and sensitive. Usually what they say is actually insensitive and makes me feel worse. 

I would out-and-out regret being honest at all in the first place, but part of me feels as though I am crusading for all bereaved people. That by using the opening in conversation to push my ongoing grief into the spotlight momentarily, I force the unscathed to remember my tragedy and to recognize, even briefly, the agony I continue to live with. Sure I walk away feeling worse because of their ineptitude and insensitivity, but maybe they’ll be more aware with the next bereaved person they confront.

If one more person wishes me a Merry Christmas or Happy Holidays I am going to punch them in the face. The random strangers bother me less. It’s the people in my life who ought to know better. Passing in the hall at the office this week a coworker says to me, “Did you have a good Christmas?” “No,” I replied flatly and kept walking. She stopped dead in her tracks, jaw slightly agape. “What?!” “No. It’s really shitty without my 14-month-old son.”

I had similar exchanges with three staff members at the perinatologist’s office the day before. And in all of these brief conversations the other party, lacking any substantive reply always, always responds with a reference to Baby Dragon – “Well you’ll have this little one next Christmas!” This is infuriating. Surely if they took a minute to think first, they wouldn’t say something so stupid. But social pressure insists we wrap up our chat neatly and on a positive note.

We are at 37-weeks. If this kid doesn’t come on it’s own we’ll induce at 39-weeks which means one way or the other we’ll be having a baby in the next couple weeks. And yet the hospital bag is not packed. The car seat is not installed. The baby laundry is not done. Is it denial? Probably a little bit. Part of me is still hesitant to truly believe we are having a baby and that this baby will actually be coming home with us.

I sometimes feel like Charlie Brown. Like I’ll come charging up to kick the football and at the very last second, it is whisked away and I end up flat on my back, hurting with the breath knocked out of me.

I am petrified. We’re at the finish line of this pregnancy and this baby could die any minute. Just -- like -- last -- time. My naivety has been obliterated. I know now, that I cannot protect this baby any more than I could protect A.

Maybe the fear is feeding the denial. If I don’t think about the approaching due date then it isn’t real, right? All of a sudden I am deflated of any self-confidence. I am scared of the pain of labor (even though I dreamed and prayed for it back in the spring when we were trying to get pregnant). I am terrified but I can’t put my finger on exactly what I’m terrified of. I do know that this terror is preventing me from spiritually and emotionally welcoming this child to the outside world. Said emotional and spiritual clamping up is probably affecting my body and preventing labor from starting on its own. I am too scared to welcome this birth with unabated enthusiasm.

The fear is paralyzing. I sit and stare at the to-do-before-Dragon-arrives-list but don’t actually do the things listed. In fact I’ve found it harder and harder to get out of bed each morning – a classic avoidance technique I honed in college. You know the sleep for hours and hours tactic?

And yet as in the darkest days of my grief, time ticks on which means birth is inevitable regardless of my acknowledgement or readiness. 

Stay safe baby Dragon; stay safe.