Sunday, December 9, 2012

Weekly Monitoring


We’re at the beginning of the 34th week. A couple weeks ago we started weekly biophysical profiles (BPPs) in addition to regularly scheduled prenatal checkups. It was about that same time that my anxiety really ramped up. If it takes a few minutes for Dragon to give me the first boot during our daily kick count, I immediately think the worst. If I can’t recall baby punches in the wee hours of the morning like usual, I bust out the home Doppler. If Dragon’s movements seem weaker than normal, I assume it’s because the blood supply is slowly being cut off and my child is making its last, feeble attempts to survive. If I feel vigorous activity, I worry that it is the baby trying to disentangle itself from the cord.

So I worry when I don’t feel movement, I worry when I do. These past weeks I’ve been feeling very fearful. While it’s nice to see Dragon via ultrasound each week and have a non-stress test (NST), it does little to allay my concerns. Everything was healthy with A until suddenly he was dead. He passed his NST with flying colors mere days before we discovered he had died. Who is to say baby Dragon won’t die on my way home from the hospital after our weekly BPP or at any given point. Unless I am hooked up 24/7 to a monitor, I will not have peace-of-mind.

I am particularly scared overnight. I’ve read various places that most babies die in utero overnight. Dr. Jane Warland has a theory about borderline low blood pressure and how the fluctuation in maternal daytime blood pressure to resting or sleeping blood pressure could be drastic enough to kill a baby.  I have tracked and calculated my blood pressures and I fall into this borderline category. Last pregnancy I could miraculously sleep through the night without a bathroom break as long as I ceased drinking fluids after dinner. However, this time I am intentionally drinking fluids right up to bedtime to ensure that I am getting up out of bed at least once a night to buoy my blood pressure. Still I often awake in a terror in the morning waiting for a kick or roll to tell me the baby is still alive.

Even fetal hiccups, which many medical professionals claim are a good thing because they indicate baby is practicing ‘breathing,’ scare the hell out of me. Dr. Jason Collins of the Pregnancy Institute has a theory that prolonged or excessive hiccups are a baby’s reflex to try and get up off a compressed cord. Each time I feel the rhythmic thumping of Dragon’s hiccups I drop what I’m doing and note the time. Dr. Collins says a fit of hiccups lasting 10-minutes or more is cause for immediate concern. Even short bouts of hiccups frighten me because, again, I immediately assume the worst.

You can read more about Dr. Collins’ research, which is geared mostly toward the umbilical cord, by downloading his book for free via his website. I have personally spoken to him on the telephone and was impressed by his willingness to take the time and answer questions of a non-paying, non-patient who lives in another state. Supposedly women have called him out of the blue after finding his website, reported current symptoms to him over the phone and he’s occasionally instructed them to report immediately to the hospital. This has, according to him, saved more than one baby.

I recognize that all of this fretting is an illusion, a delusional attempt at control. Just like focusing on all the possible things that could harm this baby is easier for me to grapple with than to face the fact that ultimately I have not control. That despite doing everything right (again), taking additional precautions and going for extra monitoring this baby too could die for no apparent reason and there is nothing I can do to prevent it. 

Note: The wonderful book, They Were Still Born, summarizes both Dr. Warland's and Dr. Collins' research.

7 comments:

  1. I know there is nothing to say that will ease your fears, but I am sending lots and lots of love and I am thinking of you and Dragon every day.

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  2. week 34. I can imagine that it's terrifying - every single day. I wish that I could tell you something magical that could ease your mind and help you relax. Be gentle with yourself, mama. Unfortunately, you can't know what you know, so here we are, holding vigil together. Reaching out through the keyboard to hold your hand. You're almost there <3

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    1. Thanks for the support Suzanne. It means so much more coming from another BLM.

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  3. All of this sounds so familiar. I feel like I was just there lying in bed many times each night, waiting and pleading into the darkness for movement and sighing with relief when he'd move, knowing that at least he hadn't died...yet. And also being scared when he moved "too much." It is agonizing! I met Dr. Warland when she was in town for a conference and she was really neat. I know all the same research and had really low blood pressure with both boys (so did Caroline at Happily Hidalgo). It is all so scary. Hang in there! xoxo

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    1. Agonizing is a good word. I don't expect the fearfulness or anxiety to let up until after delivery.

      How cool that you got to meet Dr. Warland! I've corresponded with her via email and read her research (obviously). Because no one can tell us conclusively why A died, I consider every possible harm a real threat - cord accidents, low blood pressure, infection, placental abruption, etc. Did your provider(s) do anything regarding your low BP? I've provided both my regular OB provider and my perinatalogist with Dr. Warland's work and Dr. Collins'. But it hasn't changed my care plan.

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  4. Another low blood pressure person here... but I'm curious - what, if anything, can they do about it? Please let us know if they suggest anything.

    I can practically taste your fear - and I remember it so well. Everything crossed for you here.

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